These past few days have been extremely discouraging. What I thought might be my ticket to less IV's and hospitalizations became instead a fast pass to shortness of breath, chest tightness, a need for additional oxygen, and overall huffing and puffing with the least bit of exertion. By Friday I knew it wasn't just my imagination, people kept asking me if I was okay. I couldn't carry on a decent conversation without sounding and feeling winded. It was a TOBI flashback--like a bad trip.
So I fired off an email to clinic Friday afternoon and they told me to stop the inhalations and see if I felt better by Monday. I was kind of hesitant to stop in case my symptoms had nothing to do with the Colistin and I had a bad infection taking over instead. Well, I think it is safe to conclude that my experience with Colistin has come to an end. Today I am breathing much easier--not great, but so much better. Argh! I really wanted my body to cooperate with this inhaled drug. It could have made a huge difference--instead it created a huge problem.
Maybe the next big thing will be my answer...I sure hope so!