I started IV's the first of December and was excited to stop them the first week of January. My thrill was short lived as my newly acquired 31% lung function dropped to below 26% only a week and a half later. Back on the meds I went and I'm still on them. Having to be on nearly continuous/continuous IV's can put someone within their transplant window. I am returning to Duke this weekend for my standing appointment with Dr. Palmer. I will probably find out on Tuesday the 17th what the team recommends. Will I be looking out that window once again?
Amazingly it has been 3 years since I first traveled to Duke for my transplant evaluation--it was in February of 2012. I've managed to go longer than they predicted I would before needing to come back for transplant. It's been a long time to
Although I felt miserable with nausea, weakness, dizziness, and anxiety through the holidays, I still had some great moments with my family.
|Christina was able to fly home for|
Christmas this year. She just moved up
a rank to Petty Officer Third Class!
|Maggie waiting for her turn to play the candy|
bar game on Christmas Eve.
|Wrapped in tons of saran wrap, candy bars were freed|
with glove-covered hands until the next person
rolled doubles on the dice then they got a chance
to unwrap as much candy as possible. It was
wild and crazy fun.
|Max demonstrates the next game--|
candy cane pick up. It was harder than it looks.
|Christmas morning present opening. Santa brought Christina|
a pair of Uggs.
|We didn't take too many pictures Christmas morning because|
we got distracted by gifts. Rheid gave me a massage certificate.
|Had I been feeling better and the weather more|
cooperative, we would have taken a trip to
Utah to see this beautiful couple, my niece, Krista, and
her husband, Logan sealed in the Draper Temple.
Our hearts were there; I was so sad to miss it.